Active Myeloma CyBorD Cytoxan (cyclophosphamide) dexamethasone Kyprolis (carfilzomib) Multiple Myeloma Relapsed/Refractory RVD Selinexor Velcade

Refractory Multiple Myeloma | Elise’s Story

Elise D.

Diagnosis:Multiple myeloma, refractory
1st Symptoms:Lower back pain, fractured sacrum
Treatment: CyBorD, Clinical trial of Xpovio (selinexor)+ Kyprolis (carfilzomib) + dexamethasone

Elise’s Story: Refractory Multiple Myeloma

Elise was working and raising two young kids when she was diagnosed with multiple myeloma, a type of blood cancer.

In this video series, she shares about every part of the myeloma experience so far, from how she got diagnosed to being a part of a clinical trial (selinexor + carfilzomib + dexamethasone) that’s been working, to diving into how she has been able to live with myeloma.

Explore her incredible 4-part story series below. Thank you so much for sharing, Elise!

Multiple Myeloma Symptoms

Elise describes how she realized something was wrong with her body, and how she had to advocate for herself to get the proper scans and tests done, even after many different misdiagnoses.

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The Diagnosis & Treatment Decisions

Elise recounts the thoughts and emotions that she experienced when she was officially diagnosed with multiple myeloma, and goes into her decision-making path. Elise also describes how she approached getting a second opinion and ended up going with her second opinion doctor.

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Being in a Clinical Trial

Elise describes how she went from her first line treatment to ending up in a new clinical trial, delving into what it’s been like finding a successful new treatment for her disease that doctors described as not responding to the standard of care.

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Living with Myeloma

In this segment, Elise shares how she’s been able to move forward day to day living with multiple myeloma, including the importance of finding a cancer community and how she and her husband approach life together now.

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Beth’s Multiple Myeloma Story

Beth shares her relapsed/refractory multiple myeloma story, and her experience finding a new cancer treatment that finally gave her some relief. She also talks about how she was able to physically, mentally, and emotionally move forward through continuous treatment.

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Multiple Myeloma Specialists

Hear directly from experienced myeloma oncologists and specialists. They talk about multiple myeloma in layman’s terms, describe the latest myeloma treatments, and what patients should be asking their doctors.

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  • Name: Elise D.
  • Diagnosis (DX)
    • Refractory multiple myeloma
  • 1st Diagnosis:
    • Age at DX: 34 years old
    • Symptoms:
      • Extreme pain in lower right back (for a couple years)
      • Numbness in groin
    • Tests for DX:
      • X-ray finds tumor in sacrum measuring 9×6 centimeters
      • MRI results show what looks like a giant cell tumor
      • PET scan reveals 1-cm lytic lesion, prompting start of treatment
    • Treatment
      • Chemotherapy
        • CyBorD: cyclophosphamide + bortezomib (Velcade) + dexamethasone
        • RVd: lenalidomide (Revlimid) + bortezomib (Velcade) + dexamethasone
      • Clinical trial
        • SKd: selinexor (XPOVIO) + carfilzomib (Kyprolis) + dexamethasone

Thank you to Karyopharm for its support of our educational program. The Patient Story has full editorial control of our content. The interview has been edited only for clarity.

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