How were you both at the beginning of this journey?

Esther: Andrew, at the point when you got a diagnosis of CLL, both of our reactions were, “What? What the heck? What is this?” For me, it felt very much out of our control. It was like, “Oh my God.” What was your reaction?

Andrew: I thought my life was over. I didn’t say this to you, but I thought, “I’m leaving a wife and 2 little kids. Hopefully I’ve lived pretty well.” But that’s it, because I didn’t have information.

Esther: I think that’s it. That’s what I think I want us to talk about. It seemed to me that what happened was you had those feelings. If I think back, I probably had some of the same. I was like, “Oh, my God, I’m losing my partner in life, and my kids won’t have a father.”

But there was a real transition when you and I talked about it, and we started to get information. My recollection was that we knew somebody who knew how to research these things.

Andrew: Right. When we first went to the oncologist — we’d never been to an oncologist before — and he gave us this diagnosis of chronic lymphocytic leukemia, we were both in tears. We didn’t know anybody, didn’t know what it was, etc.

Our friend David Nudelman helped us on our home computer to connect with others, and ultimately we connected on the phone. If you recall, Esther, I started going to lunch with other CLL patients in Seattle, where we lived. We started connecting, and then it was the search with their help for the smartest doctors.

Esther: Right. You did that in seeking out peers, and in parallel with that, my way of sort of getting my feet under me was to try to get a handle on my emotionalism and to get counseled and use some medication and whatever to be able to be there for you and for the kids.

Andrew: I felt the opposite. I said, “Oh, my God.” I didn’t want to face it. If you recall, the treatment started in Houston at the MD Anderson Cancer Center, this big monolithic monument to cancer research and treatment.

We were not from Houston and didn’t know anybody from Houston, so we’re definitely strangers there. I did not want to be there. I wanted to just go on, “Yeah, you got this diagnosis, but it’s not really going anywhere. Just let it ride.” I wanted to just let it ride. I was not ready for treatment.

Esther: So there you have it: 2 people, different reactions.

What topics will you be covering in this series?

Andrew: I think there are some funny things that have happened along the way. First of all, meeting some great people. Fortunately, with my illnesses (which have been long term), I’ve gotten to know my providers pretty well — the nurses, the doctors — as people. I think that’s been pretty rich.

There’ve been some episodes that have been screwy, fainting or just memorable moments, that you’ve had to work with your team. Also, just funny conversations you’ve even had with people trying to figure out, well, what’s going on with you?

Esther: I think a couple of topics off the top of my head is that it was very clear when we met with the special specialist that he was the right guy. There were a number of reasons for that. There was our local oncologist, and there was this subspecialist.

I think talking about what it takes to have a good relationship. When do you know you’ve got the right person taking care of you? That’s one. Another, I think, is for people like yourself and like us, how do you broach treatment and longevity and those things with children? With family?

I think relapse. Once somebody is through treatment, how do patient and care partner deal with the specter of relapse? What does that mean? How are the reactions different?

Andrew: How do you plan?

Esther: How do you plan your life knowing that there’s this thing out there that could or could not impact what you think is the ideal future?

Andrew: How do you travel? What if you get sick when you’re traveling? What are your resources? What’s the solution?