Things change fast.
I was diagnosed with non-Hodgkin lymphoma over the phone in December 2016. Like so many others, my family and I started to swim in questions.
How would our lives change?
Where do we go?
The unknowns were endless so we turned to the internet to search for answers. There was so much to try and figure out.
What made it worse was how the information came: medical jargon, statistics, and studies. It made us feel incredibly helpless.
Cue Dr. David Nguyen.
My husband reached out to his childhood friend, now a doctor at University of California San Francisco (UCSF) where I would later get treatment.He came over to our house the night of the diagnosis and told me and my family - in human terms - what might happen and our options. He's not an oncologist, but his experience as a doctor allowed him to walk us through the next steps.
And that's why we started the platform, originally named “OneDavid.” We are working to give one "David" to everyone who needs and wants the help - in human terms. The best way to do that?
Through the patient story.
I'm happy to say I'm in remission as of July 2017. I am now celebrating life by dedicating it to our community of cancer patients and caregivers. Big hugs.
Hear the answers to your questions from people who've lived through cancer and treatment. While their experiences won't be exactly what you will go through, the goal is to give you a sense of what your life will look like in the next year or so.
Your medical team is focused on saving lives, not on quality of life. These stories will hopefully help you regain some sense of control by giving you a head's up on areas including potential side effects and possible medications to avoid those side effects.
I spent a decade as a TV news journalist. My passion was (still is) to tell stories about people. In 2013, I pitched a story about a woman named Nina after seeing her story on my social media feeds. Her friends created a campaign to help raise awareness about the need for bone marrow donations, particular for Asians. Here is the story:
Just three years later, I would be diagnosed with the same cancer and subtype as Nina.
If you want to help, check out Be the Match for bone marrow donation help and information.