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Members-Only Video - Leukemia

Featured patient stories here: Watch interviews with patients on a variety topics including types of cancer, self-advocacy, side effects, education, medical gaslighting, cancer survivorship and more.
Members-Only Video - Leukemia
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Leesa’s Chronic Lymphocytic Leukemia (CLL) Story

Leesa received an unexpected cancer diagnosis of chronic lymphocytic leukemia (CLL) after a routine physical. She was put on 'watch and wait' for a decade before starting treatment due to worsening symptoms. These included fatigue, dizziness, infections and ocular disease. Leesa was put on ibrutinib and later switched to zanubrutinib. Now, 14 years after diagnosis, Leesa reflects on her journey and making the most of the time she has.

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Jeff’s Chronic Lymphocytic Leukemia (CLL) Story

When Jeff started experiencing fatigue and night sweats, he didn’t expect to be diagnosed with chronic lymphocytic leukemia (CLL). Jeff’s story includes undergoing watch and wait, joining a clinical trial, reaching remission and going back on watch and wait. Along the way, Jeff learned some important lessons that he shares with us: getting a second opinion, cutting out unimportant things and finding humor in all situations.

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Lynn’s Small Lymphocytic Lymphoma (SLL) Story

When Lynn received his small lymphocytic lymphoma (SLL) diagnosis in 2013, he felt like he had lost his future. Lynn saw a specialist at MD Anderson for treatment options. He is a strong proponent of seeing a specialist, especially after being a caregiver for his son when he was diagnosed with cancer in 1977. A decade after diagnosis, Lynn reflects on his first symptoms, treatment and side effects, and living life with a glass half-full mindset.

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Andrew’s Chronic Lymphocytic Leukemia (CLL) & Myelofibrosis Story

Andrew was a healthy runner with a wife and two young kids when a surprise cancer diagnosis changed his life: chronic lymphocytic leukemia (CLL). He was diagnosed with CLL in 1996. Then in 2011, he was diagnosed with a second cancer: myelofibrosis. He recounts learning and processing his diagnoses, connecting with other patients through online communities and in-person lunches and benefitting from 2 different clinical trials.

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Esther Schorr’s Cancer Caregiver Story

Esther took a vow to her husband, Andrew, to support him in sickness and in health. Then 10 years into their relationship, Esther was suddenly faced with fulfilling that vow as a young wife and mother two kids. She stuck by Andrew as a care partner when he was suddenly diagnosed with chronic lymphocytic leukemia (CLL). Esther reflects on their relationship, the importance of taking care of oneself in order to take care of others, and processing all the emotions that come with a cancer diagnosis.

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Renata’s Philadelphia Chromosome-Positive B-Cell Acute Lymphoblastic Leukemia Story

Renata was diagnosed with B-Cell Acute Lymphoblastic Leukemia, Philadelphia chromosome-positive (Ph+ ALL) shortly after finding out that she was pregnant. She shares how tricky it was to be undergoing treatment while carrying their first child, giving birth via emergency C-section and now waiting for her stem cell transplant.

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