Sarcoma Stories | What is Sarcoma? Symptoms, Diagnosis, Treatment

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Sarcoma Stories
Symptoms, Diagnosis, Treatment

What is sarcoma? Sarcomas account for over 20% of all pediatric solid malignant cancers and less than 1% of all adult solid malignant cancers. The vast majority of diagnosed sarcomas will be soft tissue sarcomas, while malignant bone tumors make up just over 10% of sarcomas. (National Institutes of Health).

Explore below for in-depth sarcoma stories from our community members who share everything: first symptoms, treatment timeline, to navigating life with cancer.


Soft Tissue Sarcoma Stories

Soft tissue sarcoma is a broad term for cancers that start in soft tissues (muscle, tendons, fat, lymph and blood vessels, and nerves). These cancers can develop anywhere in the body but are found mostly in the arms, legs, chest, and abdomen. (National Cancer Institute)

Synovial
Soft Tissue Sarcoma: Synovial Sarcoma, Stage 3 | Jillian’s Story

Jillian Jancko, Synovial Sarcoma, Stage 3



Cancer Details: 5% to 10% of sarcomas
1st Symptoms: pain in leg over 15 years
Treatment: Tumor resection, thoracotomy
...
Undifferentiated Pleomorphic Sarcoma
Breast Cancer: Invasive Ductal Carcinoma (IDC), Stage 2B | Monica’s Story

Monica Hoffman, IDC, Stage 2B



Cancer details: IDC is most common kind of breast cancer.
1st Symptoms: Tightness and lump in left breast
Treatment: Chemotherapy, radiation, surgery
Soft Tissue Sarcoma: Undifferentiated Pleomorphic Sarcoma  | Nicole’s Story

Nicole Body, Undifferentiated Pleomorphic Sarcoma, Stage 3



Cancer Details: <5% of adult sarcomas
1st Symptoms: severe intolerance to food, nausea
Treatment: Cholecystectomy, Chemo (Gemcitabine and Taxotere), Whipple surgery
Desmoid Tumor
Soft Tissue Sarcoma: Desmoid Tumor | Ashley’s Story

Ashley Williams, Desmoid Tumor



Cancer details: Rare, <3% of all soft tissue tumors, more common in women
1st Symptoms: leg tightness, increased swelling in leg
Treatment: Chemo infusion (Methotrexate, Navelbene), oral chemo (Nexovar)
Soft Tissue Sarcoma: Desmoid Tumor | Demi’s Story

Demi DeMas, Desmoid Tumor



Cancer details: Rare, <3% of all soft tissue tumors, more common in women
1st Symptoms: fatigue, lump in hip
Treatment: Surgery, radiation, chemo
Soft Tissue Sarcoma: Desmoid Tumor, Stage 4 | Alicia’s Story

Alicia Bennett, Desmoid Tumor, Stage 4



Cancer details: Rare, <3% of all soft tissue tumors, more common in women
1st Symptoms: lump found in right armpit
Treatment: Chemo, radiation, targeted therapy, clinical trials, surgery, including forequarter amputation

Ewing Sarcoma Stories

Bone Sarcoma Stories: Ewing Sarcoma | Ariane’s Story

Ariane Boyer, Ewing Sarcoma (Bone)



Cancer details: Most common in kids, young adults (teens through mid-20s)
1st Symptoms: Aching in arm, lump in forearm
Treatment: Chemo (14 rounds), surgery (of radius), radiation (36 sessions)
Ewing Sarcoma Stories: Stage 1B | Brandi’s Story

Brandi Benson,
Ewing Sarcoma,
Stage 1B (Soft Tissue)




Cancer Details: Adult case of soft tissue Ewing sarcoma, not bone sarcoma
1st Symptoms: Extreme fatigue, lump in pelvic area
Treatment: 17 cycles of chemotherapy in-patient at hospital with (leg-sparing) surgery in between

Gastrointestinal Stromal Tumor (GIST)

Gastrointestinal stromal tumor is a disease in which abnormal cells form in the tissues of the gastrointestinal tract. Genetic factors can increase the risk of having a gastrointestinal stromal tumor. (NCI)

Sarcoma: Gastrointestinal Stromal Tumor (GIST) | Louis’ Story

Louis Da Silva, Gastrointestinal Stromal Tumor (GIST)



Cancer details: Tumors that start in wall of digestive tract or gastrointestinal (GI) tract
1st Symptoms: Feeling the need for constant urination
Treatment: Surgery to take out the tumor, maintenance chemotherapy (3 years)