Rare Cancers

Home > Cancer Stories > Rare Cancers

Rare Cancers

Fewer than 40,000 people are diagnosed with a rare cancer each year in the United States. Altogether they make up just over 25% of all cancers in the country (National Cancer Institute).


Neuroendocrine Tumors

A tumor that forms from cells that release hormones into the blood in response to a signal from the nervous system. Neuroendocrine tumors may make higher-than-normal amounts of hormones, which can cause many different symptoms. (NCI)

Rare Cancers: Neuroendocrine Tumor, Stage 4 | Jennifer’s Story

Jennifer Petersen, Neuroendocrine Tumor, Stage IV



Cancer details: Unknown site of origin, metastasis
1st Symptoms: Pain in upper back
Treatment: Chemotherapy, immunotherapy

Gestational Trophoblastic

Rare Cancers: Gestational Trophoblastic Neoplasia, Grade 3 | Caroline’s Story

Caroline Chisolm, Gestational Trophoblastic Neoplasia, Grade 3



Cancer Details: As a result of a molar pregnancy
1st Symptoms:
Morning sickness and an unusually high beta hCG
Treatment:
EMACO chemotherapy