No Standard of Care
Cancer Patient Stories

For some cancers patients, there is no “standard of care.” It’s defined by the National Cancer Institute as:

Treatment that is accepted by medical experts as a proper treatment for a certain type of disease and that is widely used by healthcare professionals. Also called best practice, standard medical care, and standard therapy.Hear how some cancer patients approached the ambiguity. 

With emerging cancer treatments, the stories are changing all the time. If you have a story you'd like to contribute or have any feedback, we'd love to have it. 

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Kidney: Papillary Renal Cell Carcinoma

Name: Bill Paseman
Cancer details: Rare, < 10% of kidney cancers
1st Symptoms: Kidney stone, lower back pain, sore/stiff leg, deep vein thrombosis (DVT) blood clot
Treatment: Nephrectomy (surgical removal of kidney and ureter)

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Soft Tissue Sarcoma: Desmoid Tumor

Name: Ashley Williams
Cancer details: Rare, <3% of all soft tissue tumors, more common in women
1st Symptoms: leg tightness, increased swelling in leg
Treatment: Chemo infusion (Methotrexate, Navelbene), oral chemo (Nexovar)