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Multiple Myeloma Relapsed/Refractory Tagrisso (osimertinib)

Multiple Myeloma | Connie H.

Connie H.

Diagnosis: Multiple myeloma, relapsed refractory
1st Symptoms: Chronic bone pain
Treatment: IV Chemotherapy, CAR T cell therapy

Multiple Myeloma:
Connie H.’s Story

Connie is a self-described Wyoming cowgirl—not the rough type, but someone who balances it with gentle self-care. She’s happily married to her high school sweetheart, Greg. Together, they’ve raised three wonderful children.

In 2001, she survived thyroid cancer. In 2012, at age 46, she found herself with yet another diagnosis – this time, the rare blood cancer called multiple myeloma.

In this video series, Connie shares her story of diagnosis, numerous treatments and clinical trials, relapse, and the side effects she endured. But Connie’s journey is not yet over—a continuing quest for treatment while living life to the fullest with her family.

Explore her inspiring 3-part story series below. Thank you so much for sharing, Connie!

How I Got Diagnosed

Connie was in denial. She had constant pain in her ribs, shoulder, and hips. It hurt so bad she was limping at work and even unable to clap at her daughter’s sport’s games.
When she finally went to the doctor, she had broken ribs, a hole in sternum, soft tissue vertebrae tumor, spine hip skull lesions. At 46, she was diagnosed with Multiple Myeloma.

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Relapse, Treatment, and Clinical Trials

Connie underwent a series of IV chemo. She endured devastating side effects that took 50 pounds off her weight. There was remission but her cancer keeps coming back. This led her to try a number of clinical trials.

Read more→

Living with Multiple Myeloma

Even with initial successes from the treatments, Connie’s battle vs relapsed, refractory multiple myeloma continues. She is tireless in looking for clinical trials, going after her insurance company to make sure she gets her treatments.

Connie is such a strong and inspiring example of patient self-advocacy.

Read more→

  • Name: Connie H.
  • Diagnosis (DX)
    • Multiple Myeloma (Relapsed/Refractory)
  • 1st Diagnosis:
    • Age at DX: 46 years old
    • Symptoms
      • Chronic pain on ribs, shoulder and hips
      • Cough, bronchitis
  • Tests for DX: CT scan, Bone marrow biopsy
  • Treatment:
    • Stem Cell
    • IV Chemo (CyBorD)
    • Busulfan
    • Velcade + Revlimid (VR)
    • Cytoxan + Pomalyst
    • Darzalex
    • Bendamustine
    • Kyprolis
    • CAR T cell therapy
    • Blenrep
    • Isatuximab

Inspired by Connie's story?

Share your story, too!

Other relapsed/refractory multiple myeloma stories


Donna K.



Diagnosis:Multiple myeloma, refractory
1st Symptoms:None, found by blood tests
Treatment: Total Therapy Four, carfilzomib+pomalidomide, daratumumab+lenalidomide, CAR T, selinexor-carfilzomib

Connie H.



Diagnosis: Multiple myeloma, relapsed refractory
1st Symptoms: Chronic bone pain
Treatment: IV Chemotherapy, CAR T cell therapy

Elise D.



Diagnosis:Multiple myeloma, refractory
1st Symptoms:Lower back pain, fractured sacrum
Treatment: CyBorD, Clinical trial of Xpovio (selinexor)+ Kyprolis (carfilzomib) + dexamethasone

Beth A.



Diagnosis:Multiple myeloma, relapsed/refractory
Subtype: Non-secretory (1-5% of myelomas)
1st Symptoms:Extreme pain between shoulder blades, sternum, head, burning sensation
1st Line Treatment:VAD chemo, radiation, stem cell transplant
RR Treatment: 8 chemo regimens, successful combo→selinexor+bortezomib+dexamethasone
Scott

Scott C.



Diagnosis: Multiple myeloma, relapsed/refractorySubtype:IgG lambda (majorityof myelomas)
1st Symptoms: Pain in hips and ribs, night sweats, weight loss, nausea
Treatment:
Clinical trial, chemo, kyphoplasty, stem cell transplant
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One reply on “Multiple Myeloma | Connie H.”

Wow what an amazing lady. She must have such a zest to live. I admire her. She is an example to those who want to give up . Loved her story. She will be in my prayers Michelle

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