Multiple Myeloma Stories | The Patient Story

 Multiple Myeloma Stories

Explore below for in-depth multiple myeloma stories from our patients who share everything from first symptoms to navigating life with cancer. Also read our in-depth interview with experienced myeloma experts.

Multiple myeloma is a cancer of plasma cells. Multiple myeloma occurs when plasma cells become cancerous and grow out of control. Normal plasma cells are found in the bone marrow and are an important part of the immune system.

“Multiple myeloma belongs to the group of diseases we think about when we think about blood cancers. Specifically, myeloma is a form of adult bone marrow cancer that comes about when plasma cells convert into malignant cells,” says Dr. Rafael Fonseca of Mayo Clinic.

»MORE: What is multiple myeloma?


What is Multiple Myeloma?

Our top myeloma specialists answer questions about what multiple myeloma is.

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Intro from the Experts

Hear an introduction of multiple myeloma from our top experts, like Dr. Rafael Fonsceca.

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Myeloma Clinical Trials

Learn about the basics of clinical trials and how to participate.

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Myeloma Patient Stories

Explore our myeloma stories below, where patients describe things like:

  • First myeloma symptoms
  • What treatments they underwent
  • Navigating life with cancer
Active Myeloma
Multiple Myeloma Patient Stories: Relapsed/Refractory

Clay D., Multiple Myeloma



Diagnosis: Multiple myeloma
Cancer Details:
Early stage multiple myeloma usually causes vague symptoms, making it difficult to diagnose
1st Symptoms:
Persistent kidney issues, nausea
Treatment:
chemo, radiation, stem cell transplant
...
Multiple Myeloma Stories: Light Chain, Stage 2 | Carlos’ Patient Story

Carlos C., Light Chain Multiple Myeloma



Diagnosis: Multiple myeloma, light chain
Cancer Details:
Early stage multiple myeloma usually causes vague symptoms, making it difficult to diagnose
1st Symptoms:
Back pain and spasms
Treatment:
Back surgery to fuse T1 and T2, chemotherapy (RVD) and stem cell transplant
...
Multiple Myeloma Stories: Active Myeloma, Stage 3 | Jude’s Patient Story

Jude A., Multiple Myeloma, Stage 3



Diagnosis: Multiple myeloma, stage 3
Cancer Details:
Early stage multiple myeloma usually causes vague symptoms, making it difficult to diagnose
1st Symptoms:
Pain in back, hips and ribs; difficulty walking
Treatment:
Bilateral femoral osteotomy, reversal due to infection; chemotherapy
...
Multiple Myeloma Stories: Active Myeloma, Stage 3 | Melissa’s Patient Story

Melissa V., Multiple Myeloma, Stage 3



Diagnosis: Multiple myeloma, stage 3
Cancer Details:
Early stage multiple myeloma usually causes vague symptoms, making it difficult to diagnose
1st Symptoms:
Frequent infections
Treatment:
IVF treatment & Chemotherapy (RVD) for 7 rounds
...
Multiple Myeloma Stories: IgG Lambda, Heavy Chain, Stage 3 |  Scott’s Patient Story

Scott C., Multiple Myeloma, IgG Lambda, Stage 3



Diagnosis: Multiple myeloma, IgG lambda
Cancer Details:
Early stage multiple myeloma usually causes vague symptoms, making it difficult to diagnose
1st Symptoms:
Pain in hips and ribs, night sweats, weight loss, nausea
Treatment:
Clinical trial, chemo, kyphoplasty, stem cell transplant
...
How is Multiple Myeloma Diagnosed | The Patient Story
Explore for answers to the basic questions of multiple myeloma, from top specialists, Dr. Rafael Fonseca of Mayo Clinic and Dr. Nina Shah of University of California, San Francisco. ...
Multiple Myeloma Clinical Trials | The Patient Story
Top myeloma expert, Dr. Rafael Fonseca, share the basics of what clinical trials are, how they work, and why they are so important in the field of multiple myeloma. ...
Smoldering Myeloma
Multiple Myeloma Stories: Smoldering Multiple Myeloma (SMM) | Maui Bigelow

Maui B., Smoldering Myeloma



Diagnosis: Smoldering myeloma
Cancer Details:
Smoldering myeloma is pre-symptomatic or pre-treatment multiple myeloma
1st Symptoms:
Inflammatory eye disease, uterine bleeding
Treatment:
N/A
...
How is Multiple Myeloma Diagnosed | The Patient Story
Explore for answers to the basic questions of multiple myeloma, from top specialists, Dr. Rafael Fonseca of Mayo Clinic and Dr. Nina Shah of University of California, San Francisco. ...
Multiple Myeloma Clinical Trials | The Patient Story
Top myeloma expert, Dr. Rafael Fonseca, share the basics of what clinical trials are, how they work, and why they are so important in the field of multiple myeloma. ...

Myeloma Specialist Interviews

Hear directly from experienced myeloma oncologists and specialists. They talk about myeloma in layman’s terms, describe the latest myeloma treatments, and what patients should be asking their doctors.

Dr. Nina Shah, Multiple Myeloma | The Patient Story

Nina Shah, MD



Role:Hematologist-oncologist, researcher
Focus:Multiple Myeloma
Institution:University of California, San Francisco (UCSF)
Dr. Irene Ghobrial, Multiple Myeloma Specialist | The Patient Story

Dr. Irene Ghobrial, MD



Role: Clinical investigator and professor of hematological oncology
Focus: Multiple myeloma, Waldenström’s Macroglobulinemia, early screening, clinical trials
Provider:Dana-Farber Cancer Institute (Boston)
Myeloma Expert, Dr. Rafael Fonseca | The Patient Story

Rafael Fonseca, MD



Role: Consultant, Division of Hematology/Oncology; Dept. Chair, Internal Medicine; professor of medicine

Focus: Myeloma; defining sub-type distinctions | Clinical Trials, Selinexor, Darzalex
Provider: Mayo Clinic
Dr. James Berenson, Multiple Myeloma| The Patient Story

James Berenson, MD



Oncologist: Specializing in myeloma and other blood and bone disorders
Experience: 35+ years
Institution: Berenson Cancer Center