Leukemia Diagnosis Stories | The Patient Story

Leukemia Diagnosis Stories from Patients

What is leukemia? Leukemia is a broad term for cancers of the blood cells, most often occurring in adults over 55, but also a common cancer in children under 15.

The type of leukemia depends on the type of blood cell that becomes cancer and whether it grows quickly or slowly. (NCI)

Explore below for leukemia stories from real patients, from symptoms, diagnosis, to treatment.


Acute Lymphoblastic Leukemia (ALL)

  • Common symptoms: Fatigue, weakness, drenching night sweats, fever, easy bleeding or bruising, shortness of breath, loss of appetite or weight loss, bone or stomach pain, pain or feeling of fullness below ribs, painless lumps in neck, underarm, stomach, groin, lots of infections
Leukemia Stories: Acute Lymphoblastic Leukemia (ALL)  | Evan’s Patient Story

Evan L., Acute Lymphoblastic Leukemia (ALL)



1st symptoms: Extreme fatigue, easily bruised
Treatment: Chemo infusions, chemo pills, spinal taps, cranial radiation
Leukemia Story: Acute Lymphoblastic Leukemia (ALL), Relapse | Casey’s Story

Casey H., Acute Lymphoblastic Leukemia (ALL)




1st symptoms:
Lump on throat, extreme fatigue, shortness of breath, bruising easily
Treatment:
Chemo, immunotherapy, radiation, stem cell transplant
Leukemia Stories: Acute Lymphoblastic Leukemia (ALL), B-Cell, PH- | Veronica’s Story

Veronica B., Acute Lymphoblastic Leukemia (ALL)




1st symptoms: Mild shortness of breath and palpitations
Treatment: Chemo, targeted therapy, double cord transplant
Leukemia Stories: Acute Lymphoblastic Leukemia (ALL), T-Cell, Relapse | Christine’s Story

Christine M., Acute Lymphoblastic Leukemia (ALL)



1st symptoms: Enlarged lymph nodes, pain in abdomen, nausea
Treatment: Chemotherapy, bone marrow transplant
Leukemia Stories: Acute Lymphoblastic Leukemia (ALL) | Ciara’s Patient Story

Ciara T., Acute Lymphoblastic Leukemia (ALL)



Cancer details: Treatment without blood tranfusions
1st symptoms: Fatigue, shortness of breath, night sweats, petechiae
Treatment: Chemotherapy
Leukemia Stories: Acute Lymphoblastic Leukemia (ALL), Childhood Leukemia | William’s Story

William Y., Acute Lymphoblastic Leukemia (ALL)



1st symptoms: Extreme fatigue, achey hands
Treatment: Chemotherapy, CAR T-Cell therapy
Leukemia Stories: Acute Lymphoblastic Leukemia (ALL) | Lauren’s Patient Story

Lauren J., Acute Lymphoblastic Leukemia (ALL)



1st symptoms: Extreme fatigue, easily bruised
Treatment: Chemo pills, chemotherapy, spinal taps, total body radiation, bone marrow transplant

Pediatric Acute Lymphoblastic Leukemia (ALL)

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Acute Myeloid Leukemia (AML)

Acute Myeloid Leukemia is a cancer in which the bone marrow makes immature white blood cells, known as myeloblasts. AML is the most common type of acute leukemia in adults.

Leukemia Stories: Acute Myeloid  Leukemia (AML)  | Sasha’s Patient Story

Sasha T., Acute Myeloid Leukemia (AML)



1st symptoms: Easily bruised and swollen, painful hip
Treatment: 4 chemo infusions, bone marrow transplant
Leukemia Stories: Acute Myeloid Leukemia (AML), FLT3 Mutation | Luisa’s Patient Story

Luisa L., Acute Myeloid Leukemia (AML)



Cancer details: Most common type of acute leukemia in adults
1st symptoms: Painful hives on legs & migraines
Treatment: 3 cycles of chemo, total body radiation & stem cell transplant
Leukemia Stories: Acute Monocytic Leukemia, AML M5 | Hayley’s Story

Hayley A., Acute Myeloid Leukemia (AML), M5



Cancer details: Most common type of acute leukemia in adults
1st symptoms: Severe fatigue and excessive bleeding after oral surgery
Treatment: Chemotherapy, bone marrow transplant
AML MDS | The Patient Story

Nicole T., Acute Myeloid Leukemia (AML)



1st symptoms: Severe itchiness, night sweats, fatigue
Treatment: Chemotherapy, bone marrow transplant
Leukemia Stories: Acute Myeloid Leukemia (AML), Relapse, Clinical Trial | Mary Clare’s Story

Mary Clare B., Acute Myeloid Leukemia (AML)



Cancer details: Relapsed but in remission after 2nd transplant
1st symptoms: Extreme fatigue, upset stomach, bad & persistent headaches
Treatment: Chemotherapy, radiation, 2 bone marrow transplants
Leukemia Story: Acute Promyelocytic Leukemia (APL) | Leslie’s Patient Story

Leslie T., Acute Promyelocytic Leukemia (APL)



Cancer details:A sub-type of AML
1st symptoms:Fatigue, joint paint, migraines, bruising easily, trouble breathing
Treatment:Chemotherapy (Atra & arsenic)
Leukemia Stories: Acute Promyelocytic Leukemia (APL) | McKenzie’s Patient Story

McKenzie R. Acute Promyelocytic Leukemia (APL)




1st symptoms: Repeat sinus infections, abnormally heavy menstrual cycle
Treatment: Chemotherapy (ATRA oral pill & Arsenic trioxide infusions)
Acute Myeloid Leukemia  | Michele G.

Michele G., Acute Myeloid Leukemia (AML)



1st symptoms: Bruising, tiredness, shortness of breath, itching



Treatment: IV chemo, 2 stem cell transplants, targeted chemo pill
Acute Myeloid Leukemia Patient Stories on AML Diagnosis, Treatment & Side Effects Acute myeloid leukemia or AML is one type of leukemia, a cancer of the blood and bone marrow that happens when the bone marrow makes an abnormal type of white blood cell called myeloblasts, red blood cells, or platelets. It’s the most common

Chronic Lymphocytic Leukemia (CLL)

CLL is the most common form of leukemia in the U.S. It’s a cancer in which the bone marrow makes too many lymphocytes (a type of white blood cell).

Chronic lymphocytic leukemia (also called CLL) is a blood and bone marrow disease and usually progresses slowly as opposed to acute leukemias. It is the most common type of chronic leukemia in adults.

More on CLL:

Chronic Lymphocytic Leukemia (CLL) Stories: Non-Hodgkin’s Lymphoma| Tony’s Patient Story

Tony D., Chronic Lymphocytic Leukemia (CLL)



Cancer details: ~25% of new cases of leukemia, also classified as non-Hodgkin lymphoma (slow-growing)
1st Symptoms: Lump in back of neck that got bigger in a couple weeks
Treatment: Chemo pill (Imbruvica), takes 3 pills a night
Chronic Lymphocytic Leukemia (CLL) Stories | Lacey’s Story

Lacey B., Chronic Lymphocytic Leukemia (CLL)




1st symptoms: Extreme fatigue and elevated WBCs
Treatment: FCR chemo and Venetoclax+R
Non-Hodgkin’s Lymphoma Stories: Chronic Lymphocytic Leukemia (CLL), Clinical Trial

Sean R., Chronic Lymphocytic Leukemia (CLL)



1st symptoms: No apparent symptoms; went to ER for unrelated shoulder pain
Treatment: Clinical trial, Ibrutinib & Venetoclax
CLL Diagnosis Stories | Stephen’s Story

Stephen B., Chronic Lymphocytic Leukemia (CLL)



1st symptoms: difficulty swallowing and fatigue
Treatment: Rituxan, Bendamustine, targeted therapy BTK inhibitor (ibrutinib)

Chronic Myeloid Leukemia (CML)

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CLL Treatment: Dr. Tim Fenske | The Patient Story

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