Kidney Cancer Stories
Renal Cell Carcinoma, Stage 2
“I wasn’t sure if I had an impactful journey because there’s so many people that have it so much worse. I almost felt selfish for taking the space to talk about my journey because it’s straightforward. I just want to say that if you feel like your journey is not worth sharing, that’s not true. I’ve had people reach out to me and share their stories and share that they have found strength from me. No matter what your journey looks like, own it and share it with other people because it absolutely will help someone. “
Name: Rachel Rhee
Diagnosis: Renal cell carcinoma in right kidney
Blood in urine
Sharp abdominal, back pain
8cm mass on right kidney
Treatment: Laparoscopic nephrectomy
Status: No evidence of disease
Table of Contents
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What were your first symptoms?
My first symptoms were so across the board. The night before I actually went to the hospital, I was feeling super fatigued. I just had low energy. It was the summertime, so I thought it was because of the heat and being out in the sun. The next day, I still felt more tired even after a full night’s sleep. Then it started turning into stomach pains – really sharp pains in my lower abdomen. Then there were shooting lower back pains on that same side. I remember having to use to restroom in the morning, and the toilet was completely red with blood. At that point, I still didn’t really realize because there was no real indicator that anything else was wrong up until then. I thought it had something to do with my menstruation or something since I also had lower back and stomach pains. Then, all of the sudden, I started sweating really profusely. I had this huge puddle of sweat underneath my feet. Then I started getting really nauseous and dry heaving. I was trying to throw up, but nothing was coming out. It was just bile. At that point, obviously everything combined, and I knew something was wrong. Everything kind of hit me all at once.
When did you go to the doctor?
I was visiting my parents at that time. My mom said “Just put a heating pad on your stomach. You probably ate something weird last night.” I was essentially screaming at her and said, “No it’s not just a stomachache.” The pain was getting worse and throbbing more intensely. She decided to take me to urgent care that morning. When I was at urgent care, they said that I most likely had kidney stones. They could see that I was in a lot of pain, so they sent me to the ER because they didn’t have pain medicine that was strong enough to help me. Luckily, the ER was about a mile down the road. When I went there, they also said I most likely had kidney stones. They said they would do a CT scan just in case to rule out anything else but said I should be out of there in a couple of hours with some medication to let the stones pass.
How did you get diagnosed?
did the CT scan. I had gone in the morning, and it was now late afternoon. So much time had passed and no one else had come to see me. Finally, the doctor came in and said that they found an abnormal mass and they would need to keep me there to do further testing. They had put me on a morphine drip to help with the pain that I was in. As I was waiting for the doctor, the pain was finally starting to go away, so that was helping.
What were the immediate next steps after diagnosis?
They kept me there at the hospital overnight and while I was there, they had me do another CT scan. The first scan didn’t have any contrast. This second scan was with contrast. I think the contrast is basically like a dye where the doctors can see things more clearly and see where the exact outline of the tumor is. Because of that, they were able then show it to the kidney specialist. There was a urologist that saw me as well as an oncologist. The urologist was the one that was my main point of contact. He was the one that said, “It looks like the mass is about 7.5 to 8 centimeters large.” He said there was no way they could say absolutely it was cancer, but he said there was a 99.9% chance it was cancer.
How did you react to the diagnosis?
My dad was working at the time, so my mom and brother went home to help him with something. At this point it was later in the day, and I was alone at the hospital. That’s when I started bawling and the emotions all came out. I started calling all my friends. They were really crucial to my support – especially in the beginning. Within 24 hours, I went from thinking everything was fine to now – 12 hours later, I have cancer. Everything was just really hard to process. I was crying on the phone with my friends, and some of them were saying, “There’s still a small chance it’s not cancer.” That honestly didn’t really help me, but obviously I knew that it was coming from a good place and they were trying to support me.
How did you break the news to your friends?
I told my close friends first. I called them. I texted them. I also have a very large support system on social media. As a profession and as of last year, I became a blogger and a content creator full-time. So, a lot of people I talk to are through direct message on Instagram. I ended up posting a photo while I was in the hospital of myself saying that I had cancer and the initial thoughts on what I was feeling. In that moment, I felt really positive and strong. In hindsight I really did, but in that moment I felt like I had to put on a strong face.
Can you walk through what the CT scans were like?
I remember when I was still down in the emergency room – so my first CT scan – I started to get really emotional because it’s a very cold room. You are laying down about to go under this buzzing machine, and it just seemed very intimidating. The technician is behind the glass screen, so you just feel really alone.
The scan itself was very quick. It was maybe 5 minutes – if that. You go in, you hold your breath when they take the actual scan, and they reposition you so they can get different areas. They scanned my abdomen area as well as my chest area. The scan was very easy, but I think it was all of the emotions – everything the scan signified that was the difficult part for me.
2. Treatment Decisions
Did you get a second opinion?
The doctors that saw me at this hospital said they wanted to schedule the surgery right away. They said for kidney cancer – at least what they could see in my case, it was slow-moving, but they definitely wanted to schedule it for the near future. They wanted to see me later that week. It was happening a little suddenly, so I decided I wanted to go home and see another doctor. They had said there’s no other diagnosis that another doctor would give me, but of course if I would feel more comfortable seeing someone else, then I should do that.
I ended up getting two other opinions. Both of those doctors said they agreed with the original diagnosis. Then it was a matter of which doctor I felt the most comfortable with and who I felt like was more empathetic, who took their time with me, and answered my questions.
Which treatment center did you go to? Why?
I went to Cedars-Sinai here in Los Angeles. I felt like I was really taken care of. I felt like even though my doctor was so established – he was the head of Urology when I was there – he was giving me the care and attention that I needed. I felt that he really cared about his patients, so that’s why I decided to go with him.
Did you feel like you had to self-advocate during your treatment?
With the doctor I chose, I didn’t feel like I ever need to stand up for myself. That’s the reason I chose him. With the two doctors I saw before him, I think they felt like, “Oh it’s just a simple surgery, no big deal.” This is their world, so they see things very clearly. There wasn’t any emotional connection with me. That’s when I decided something didn’t feel right and decided I need to stand up for myself, so I went somewhere else until I found my doctor. Every situation is different, but it was really important for me to have a doctor that cared and wanted to make sure I was comfortable.
» More: How to Be a Self Advocate
How long did your treatment plan last from start to finish?
I was diagnosed with cancer – the unofficial 99.9% diagnosis – at the end of August. I acted quickly in terms of seeing all the surgeons and getting the other opinions. I had my surgery on September 11th. I was in the hospital for 3 days or so afterwards. The time from getting the diagnosis, to surgery, to going home from the surgery was less than a month, and recovery took at least 2 months to start feeling more like myself again.
Was chemo ever brought up?
They said that they would have to look after the surgery to see if they got everything out. From the scan, it looked like my tumor was contained to my kidney, but they wouldn’t know until they actually got in there. This might be misinformation on my part, but I think a doctor told me at some point that chemo is the least effective treatment for kidney cancer. I don’t think chemo was on the table for me. I think it was more of a wait and see situation after the surgery. They just wanted to make sure it was contained.
Was there anything particularly surprising that happened during treatment?
The recovery time was a bit shocking for me. I assumed that after a couple of weeks, I’d regain my strength. I knew I wouldn’t go run a marathon or anything, but I thought that I would be able to function day to day. I was surprised at how long the recovery time was. Because everything happened really quickly for me from symptoms to surgery, I think the recovery was the time I could finally process my emotions.
How were you feeling when you realized you needed surgery?
I was extremely nervous. My doctor said they most likely would have to take out my whole right kidney. Because the tumor was so large, there was no part of my kidney they could salvage. I thought, “Can people function with just one kidney?” I’d seen medical dramas on TV, and it seems like people just donate them, so it seems like living with one is okay. It’s funny that I looked to entertainment and TV to help me find answers. My doctor said that I might need to change my diet for recovery. But ultimately long-term for my life, I could go on like normal. Now I just need to go to check-ups and regular scans.
What were the preparations for surgery like?
Pre-op was essentially a liquid diet, and not getting to eat anything. Before surgery, I had to get an EKG to check and make sure my heart was healthy and normal since I was going under general anesthesia. I got a physical from another doctor just to get the okay from him. That was kind of it. To get all of those different results in took about a week or so – but once I got that okay from the doctors and my blood results and scans looked good, the doctor felt comfortable to move forward.
Did you have anxiety before the surgery? How did you deal with it?
Before surgery, a friend of mine suggested I watch a documentary called “Heal.” I rented it, and it definitely helped me with my mindset. It didn’t remove the anxiety, but it did help me get momentary perspective on how I should be thinking. Essentially, it had to do with how our thoughts really affect out physical being. It was kind of just about remembering to have positive thoughts to help with internal healing. I tried to keep reminding myself of that. It did help in certain moments. Also, I started to really get into meditation and breathing exercises. I got into taking a moment for myself.
What was the nephrectomy like?
It’s basically making small incisions in your abdomen with a robot. Because they use a robot, the incisions are smaller than they would be if it were a surgeon physically making each of the cuts. Leading up to the surgery itself, you just kind of wait around.
When you’re actually in the operating room itself, there’s a whole team. I was surprised to know that there were so many. There were two residents assisting, a couple of nurses, my doctor, and the anesthesiologist. So there were at least 5 or 6 people in the room at all times. You’re never alone with just one person.
The surgery itself took around 4 hours. When you wake up, you’re groggy. They told me beforehand that I’d be passing a lot of gas and feel very airy inside because of the way the surgery is done. The robot they use for the surgery has 5 or 6 arms and one of them is for pumping air into your abdomen to make space for the doctors to work.
The doctors also let me know that it would be really difficult for me to pass a bowel movement. They said I would feel constipated from all the medication and trauma that’s going on in the body. They give you medication to deal with that. You won’t be getting up to use the bathroom. They connect you to a bag so if you did have to use the restroom, you could. You’re pretty immobile for that first day. You won’t even feel yourself needing to go pee, so the catheter takes care of that.
Were you in a lot of pain when you woke up from surgery?
Immediately after, I was still knocked up on all the different medications that they had put me on. I didn’t necessarily feel pain until later that evening. In the middle of the night, I remember having to call the nurse to give me more pain medicine. When you’re in the hospital, they give you around the clock pain medication, but sometimes you might need a little bit extra. You can just let the nurse know how much pain you’re in, and they can see and dose out the medication that you’re not taking too much of a certain thing. They monitor that for you for the next couple of days post-op.
How long did you stay in the hospital?
Two nights and three days. I wanted to stay a third night, but the whole team said it would be better if I went home. I think it was just the fear I had creeping up again. I wanted to be around medical professionals because the what-ifs were kind of paralyzing for a little bit.
My doctors told me to just get as strong as I could while I was in the hospital. I had a nurse’s assistant come in every day, multiple times a day to help me walk. There were little goals we had – walk around the bed, to the door, down the hall, and if I needed to sit down, he would bring a chair for me.
You kind of take that at your own pace, but the important thing they told me was to just try. I’m really glad they pushed me because at the time I just did not have that kind of energy. You feel like you can’t walk because you’re hurled over. It’s hard to stand up straight, so it’s really helpful all around. Since they had me moving, though, that’s when I started to feel pain. I was sore from that. It made it easier when I was at home though because I remembered what it felt like to move around at the hospital. That way it didn’t feel unfamiliar at home.
How long did it take to start feeling like yourself again?
I lost my appetite after surgery, but my doctor had told me to over-consume. He said I needed more calories because my body needed that extra fuel to recover. The first couple of times seeing my doctor, he said it was normal to be sleeping all day. I was sleeping 15 hours a day. He reassured me that it was just because my body had just been through major surgery and that it would take time to feel normal again.
I think it was also the fact that now I only have one kidney, and at that point, my one kidney was having to learn to function as two, so it was just a lot to recover from. My doctor wanted to make sure I knew it was okay that I was tired all the time and that I couldn’t walk normally for two months and that I would get better.
How did you have to change your diet? How did that feel?
Any time I lose my appetite, I know something’s not right. I remember not wanting to eat anything at all. Nothing sounded appetizing at all. I was at my parents’ house and my mom would ask what I wanted. My doctor told me I needed to eat almost double what I normally would in order for my body to recover, and I really had no desire for anything, so that was really a struggle.
Did your doctor specify any foods to include?
They did say in the hospital that I should up my protein for the immediate future. They didn’t necessarily say what kind or any specific recipes. They left it open for me, but they said I needed extra protein to get better.
The doctor took a biopsy during the surgery. How long did it take to get those results back?
During surgery, they took a biopsy, and they examined the mass. The doctor told me it would take 7-10 days to get the results back. When I went into the doctor the first time after surgery, he confirmed that it was in fact renal cell carcinoma. It was stage 2. He was less concerned about the staging. I specifically asked about it, but for him, it was important to make sure it hadn’t spread. Whether it was stage 1 or 2 didn’t really concern him as much as knowing that he got all of it.
How did you find out you had no evidence of disease?
I knew in the hospital, after surgery when my doctor told me it hadn’t spread that I would be okay. I knew there wasn’t any further treatment needed, but I didn’t actually absorb that information until I held the piece of paper at the follow-up. I always felt like it wasn’t real because it wasn’t on paper. When they told me in the hospital, I thought it might change. Then he called me, and I still didn’t believe it. I think I just needed to see it on paper in order to believe I was cancer-free. That was less than two weeks after surgery.
What does your follow-up routine look like?
I don’t know if I’ve actually heard the word, “remission.” I think it’s more that he removed the tumor, I’m healing well, and now we just have to monitor. Because I’m on the younger side and don’t have a family history of cancer, he wants to be a little more cautious in my case. The standard is to get scans once a year, but for me, I get them every 6 months for the next couple of years.
5. Emotions & Support
How did you deal with your thoughts and emotions in front of your family?
With my family dynamic, I’ve always felt that I’m the middle person. The mediator, the strong one, the piece that connects two family members together. I’ve always felt like I’m a bridge for them in a lot of ways. I grew up with a mentality that said I had to constantly be strong, and I carried that with me into getting sick as well. When I see my dad – who rarely gets emotional – break down, I thought, “there’s no way I can get into that mindset to.” He would be hugging me and bawling, and saying “How could our Rachel have cancer?” So I would comfort him, and I would tell him, “Don’t worry. I won’t have it anymore soon. Surgery is going to get it.” I felt like I had to take on a parental role in some ways because I had to be strong for my parents.
What part of the whole experience was the hardest?
For anyone that is dealing with that, having an outlet is super important. Whether it’s having a support group of other people with a similar diagnosis, or confiding in a friend or family member, it’s important. I would suggest confiding in someone who isn’t always looking for a solution or saying, “It’s going to be okay.” Those things weren’t very helpful for me. Going to the right people who have an open ear is really crucial to the healing process.
What helped you through the toughest times?
It sounds silly for people who aren’t in it, but since Instagram is such a big platform for me to connect with people, that was really helpful. I would tell people through my Instagram stories how I was feeling. To get direct responses from even strangers sharing their stories with me too was the most helpful.
And then having friends make an effort to drive down to see me – that was really encouraging. I had times where I would get in the car and before I even said hello, I would start crying because they were a safe space where I didn’t have to be so strong anymore. Having space to freely feel was really important.
How important was it for you to have your parents care for you after surgery?
How did you ask for help when you needed it?
I felt very comfortable asking my mom for help. We’re very close. That didn’t feel strange, but I felt bad about my friends.
How did you handle the stress of your job through treatment?
I blog and create content on Instagram as a full-time job. That’s very picture-intensive and requires me posting photos. When you’re in this situation where you can’t really walk and need help going to the bathroom made it really difficult to navigate. When you’re thinking of what photos to post but you’re not really happy or don’t want to take a photo, it’s hard.
This is why I think it’s so important to have an emergency fund. I felt like I would still be okay to pay for living expenses because I did have savings. I didn’t feel like I had to rush back into work to get a paycheck. Being really clear with those who you work with is key. If you can find a way to work, that’s fine, but I would say minimizing the time you spend thinking on work. The minute I started trying to think about work, I would feel very overwhelmed. I couldn’t focus on work and recovery at the same time. Give yourself space. Work is not everything. Your health is everything.
Can you describe what it’s like to go through cancer and find a “new normal?”
I feel like so much has changed. Your perspective does a 180. I remember going to a specific outing with a group of friends that I hadn’t seen in months. I remember feeling very strange and like an outsider. I listened to certain conversations they were having that were so similar to conversations they’d been having before my diagnosis: “So and so did this or said this.” I would totally have partaken in that before diagnosis, but going through what I’ve gone through, listening to that just didn’t really seem to matter anymore.
Do you have a message you want to give someone going through this?
I was diagnosed with stage 2 kidney cancer – renal cell carcinoma. My message to someone in a similar situation that I was in is — to give yourself the space to feel your emotions, to really understand what’s going on with you.
Be present and don’t shut your emotions out. I went through a lot of denial in the beginning. Because of that, all of my emotions came later. It would’ve been helpful for me to really try to understand what was going on – not to try to fix the situation or look for solutions. Things are out of our control in a lot of ways.
Understand that it’s okay to be angry, it’s okay to cry, and it’s okay to not be strong in front of people you think you have to be strong for. Really allow yourself to feel everything that you need to. It’s up to the other people around you to support you in the way that you need. Don’t think about their emotions so much; think about what you need.
How does it feel to share your story?